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America

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07/21/2017

Remembering the Exodus

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Volunteerism & Philanthropy

Pop's Run 2012 - A Huge Success

Kudos to the Nassau Wings Motorcycle Club for once again sponsoring a hugely successful event to raise money and awareness for amyloidosis, a little-known disease that has no cure.
 
The story of Nassau Wing's connection to amyloidosis is told in the video.  What may not be as obvious in the video is the fact that amyloidosis is so often misdiagnosed, mistreated and, consequently, those suffering with the disease never have an opportunity to go into remission.  Amyloidosis often mimics other diseases.  Brenda and Jason are two young people interviewed in the video who have lost their parents.  Brenda tells her story very succinctly.  Unfortunately, due to an untimely gust of wind, Jason's story was inaudible and, thus, had to be eliminated; however, Jason's mother's story is typical of many, many amyloidosis patients ... his mother died very recently due to the fact that she was not diagnosed as having the disease until it was too late for treatment.
 
Nassau Wings is truly a motorcycle club with a big heart.  Their yearly fundraiser is helping to fund Boston University Medical Center's search for a cure.
 
At the end of the informational portion of the video, I hope you enjoy the music of Sunken Meadow, a new group to the music scene on Long Island.   Sunken Meadow was generous enough to donate their time to the Pop's Run event, which helped make the day so enormously successful.
 
To donate or to get more information about amyloidosis go to:  http://www.amyloidosissupport.com/
 
To learn about the Nassau Wings Motorcycle Club go to: www.facebook.com/NassauWingsMC
 
For more information about the music of Sunken Meadow, go to:  www.facebook.com/sunkenmeadowmusic

Today is: November 19, 2017 - 7:25pm
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